Hemophilia is a chronic disease and so far incurable, however, medical advances have allowed greater survival and better quality of life (CV) among those who develop it. The objective of this review is to present the current state of scientific literature on CV in people with hemophilia, produced between 2008-2012. Research was found to have focused on physiological factors that negatively affect or protect these people's CV; however, there is evidence of the need to address psychosocial factors as well. Specialized tools for the evaluation of CV in hemophilia patients are scarce and the reviewed publications focus on evaluation rather than CV intervention. Contrary to what happens in other countries, no research on CV in haemophiliac patients was found in Colombia and therefore the impact of this disease on the functionality and well-being of these patients is unknown.
|Translated title of the contribution||Quality of Life and Hemophilia: A Literature Review.|
|Pages (from-to)||169 - 191|
|Number of pages||22|
|Journal||Revista Ces Psicología|
|State||Published - 2015|