Evaluación de la calidad de vida relacionada con la salud en personas con discapacidad intelectual: ¿Un asunto ético o metodológico?

Health-related quality of life has now become one of the outcomes that are proposed to evaluate the effectiveness of therapeutic interventions, especially in conditions that have no medical cure and in which health interventions are expected to impact the way people live. In the case of people with intellectual disabilities there is controversy not only about the assessment of quality of life as an outcome but also about the ethical and methodological considerations involved in their use. This paper addresses the ethical and methodological issues of including health-related quality of life as a clinical outcome in people with intellectual disabilities.